Thursday, June 13, 2013

Relay for Life

Last Friday we had the awesome experience of attending Relay for Life! It raises money for CANcer research while celebrating survivors and their caregivers.  Of course the kids needed shirts to celebrate their Daddy:

When we arrived, the first thing we saw was this awesome message - "HOPE!" 

They had boards for survivors to sign showing the number of years they have been CANcer FREE.  It was great to see Allen sign that board.  Can't wait until he can sign the 20 years plus board!

Then, all the survivors walk a lap by themselves while we clapped and cheered for them.  It was great! Check out Allen carrying the banner!

After the first lap, the caregivers got to join in.  A BIG thanks to Uncle David and Aunt Emily for joining in on the fun! (Emily is taking the picture.)

Next up was dinner! It was a gorgeous evening, so we all enjoyed sitting outside, relaxing, and just being together.

I had to get a shot of the kiddos with their Daddy.  Check out that attitude from Brookelyn! 

Relay for Life allows you to honor people who have fought CANcer with luminaries.  Even cooler, they let you decorate them.  Here are the kids decorating a luminary for Daddy:

It turned out beautifully!


Once it is dark, everyone does a lap looking at the luminaries.  It was a time to reflect on the journey that has brought us here.  What a wild and crazy journey it has been.  

We can't wait for next year's Relay for Life.  Team ALL-EN has big plans to form a team and participate in all the overnight events!

Wednesday, May 29, 2013

Dancing in the Rain

With a new baby, I find myself up at all hours of the night and early morning feeding, rocking, and changing diapers.  Often, I surf the Internet on my iPhone (really, what did people do before the iPhone).  One night I came across the blog of a mommy with a chronically ill child.  She writes that the best advice someone gave her to was to remember, "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."  

Even writing that sentence, I get goosebumps.  We have lived through a nine month long storm.  A storm that neither Allen nor I ever expected to have to weather in our early thirties with two young children and one on the way. A storm that taught us so much about ourselves as individuals, as parents, and as a couple.  A storm that showed us how much we are truly loved by our friends and family.

Looking back, there were definitely times I wanted to curl up and wait "for the storm to pass," and it is those times that Allen, or the kids, or the little baby in my belly reminded me how important it was to keep "dancing" - to be thankful for each day we had together and enjoy the things I might have taken for granted before.  Because getting caught up in the thunder and lightning does nothing but make you miserable.

Dancing in the rain isn't easy.  But, I definitely had some amazing teachers.

The CANcer Ninja literally kept both Allen and I sane throughout all the chemotherapy treatments.  While we dreaded every other Friday's treatments, we always looked forward to seeing him.  He would come in the room smiling, knowing we probably had some long list of crazy questions to ask him that would take up way too much of his precious time, but he never seemed to mind.  And, that meant so much.  We always left that room feeling confident that Allen would beat this stupid CANcer. Thank you CANcer Ninja for the strength you gave me that allowed me to dance in the rain.

My CANcer friends - friends who have been through the CANcer storm themselves or with a loved one - were the most amazing role models and always knew just the perfect words to say at the perfect time.  You were there to love on our kids like they were your own while Allen had surgeries or doctors appointments or treatments, and you never even hesitated when I asked you again and again.  You were there to send me text messages every day just to check in on us and make sure we were doing ok and to send Allen encouraging notes on the days he had chemo, and you never forgot, not even once.  You were there to listen to my updates because some days just talking about something that I could wrap my mind around, like a procedure or appointment was so important, because CANcer is just something I couldn't seem to grasp.  Thank you CANcer friends for the love you gave me that allowed me to dance in the rain.

Our families went above and beyond to make life as easy as it possibly could be with two young kids, a hormonal pregnant woman, and a Daddy fighting CANcer.  Thank you for dropping everything to fly to Arkansas and take care of the kids for weeks at a time while Allen and I navigated through the early days of his diagnosis.  And for staying "on call" for nine months while we weathered the storm.  The nights you watched the kiddos so Allen and I could have some quiet time just to breathe meant more than you will ever know.  And seeing Brookelyn's and Braedyn's smiling faces as they came back home allowed me to enjoy those nights, just knowing they were being spoiled in a way that let them too to forget about washing hands and germs and their Daddy being sick. Thank you to our families for the peace you gave me that allowed me to dance in the rain.

It was a Saturday when the ER doctor on call told me my young, healthy, triathlete husband had CANcer.  Sunday was a really hard day.  Monday was tough too, waiting to see the doctors on Tuesday and start the diagnosis process. Tuesday I remember standing the in driveway waving to Brookelyn as she left for school and Allen coming out to wave too.  When we looked up we saw the most beautiful double rainbow in the sky.  I hadn't seen a rainbow in a really long time, and I told Allen that I knew that it was a sign things were going to be ok.  Throughout this storm I have often thought of that rainbow.  I am not a believer in coincidences.  A rainbow, you know comes after the rain.  But, in this case I think it was sent before, just to remind us to hold on through this, the toughest storm we had faced, to dance in the rain, even when we were scared or exhausted because the clouds really do always clear.  Allen's last treatment is tomorrow, and I have a feeling we might just see a rainbow really soon!


Tuesday, May 14, 2013

Radiation Begins!

Today marks Allen's 7th radiation treatment.  7 down, 10 to go...almost halfway there! Last week we met with The Radiator to discuss Allen's "plan of action."  He had consulted with MD Anderson and their knowledge combined with his experience produced a plan that will hopefully minimize the exposure to Allen's heart and lungs.

We have been so thankful for the amazing doctors and staff at Highland's Oncology and feel blessed to have a state of the art facility just a few minutes from our house!  Check out Allen's view each morning:

Once he gets to the center, Allen has to put on a robe and lay on a special body form to put him in just the right position.  The technicians line up the marks on Allen's chest (Braedyn call's Daddy's marks the "treasure map" because there are a lot of black lines and red "x's") and then x-ray him to make sure he laying perfectly.  Then, Allen receives his radiation dosage to the specified areas.  The whole process takes about 15 minutes or so.  After treatment, Allen is off to the office and his normal daily routines.  So far, he hasn't had any side effects, and he has been able to run and bike like before diagnosis.  The treatments do compromise his immune system, but it isn't nearly to the extent that chemo affected him.  

In a couple of weeks Allen will be finished with his treatments and will start the follow up process of seeing The Ninja every three months (Allen's first appointment is July 3rd) with scans every other appointment.  The risk of reoccurrence goes down after two years of clean scans, and Allen will be considered "cured" after five years of clean scans.  We can't wait to get the official "cured" stamp, but in the meantime we will just enjoy having Daddy healthy!


Monday, May 6, 2013

We've Been Busy...

A little over two weeks ago we welcomed the newest member of Team ALL-EN:

Braxtyn Eric Bates

Can you tell his big brother and big sister have enjoyed every second they have spent with Braxtyn too?!


Needless to say, we have been immersed in feedings, changing diapers, and sleepless nights.  And, it has felt so good to be focused on something other than CANcer!  

With that said, Allen has a big appointment tomorrow with The Radiator.  We will get to see the treatment plan he has put together, and Allen will begin his three week course of radiation. Allen is  ready to get started so he can officially be done with all of his treatments!  

Tuesday, April 9, 2013

Back in the Groove...

On Saturday Allen and Brookelyn ran a one mile fun run race together.  It has been our tradition for the last three years to run the half marathon race, but obviously neither Allen nor I were in any shape to run that distance.  So, Allen concentrated his efforts on training Brookelyn! They had so much fun!  Up next, he is training her for her first 5K.

Thursday, April 4, 2013

REMISSION...That Word Sounds SO Sweet!

Yesterday Allen had his post chemo scans.  They started off early in the morning, with a "yummy" Barium shake.  (Allen compares them to drinking latex paint!)
Down the hatch! 
The scans (both PET and CT) took about an hour or so to complete, and then he was radioactive.  That is always so weird to type - to think about a person being radioactive. It isn't an issue unless you happen to be around pregnant women or young children, which obviously covers everyone else in this household, so it IS an issue for us.  He has to stay at least six feet away for 12 hours.  After scans, we had lunch while we waited for them to be read and to meet with The Cancer Ninja. And, yes, we sat on opposite sides of the waiting room while we ate.  It felt so silly!

After a quick lunch, it was time for results! The Ninja had GREAT news! Allen is still in COMPLETE REMISSION! It was just what we wanted to hear! We looked over all the scans with him and Allen's chest mass has shrunk from 14 cm to 5 cm.  A normal person has about a 2.5 cm to a 3 cm thickness in that area, so Allen is really just about 2 cm bigger than average! Wonderful news! The Ninja went over symptoms that we need to watch for over the next three months and discussed Allen's next stop on the CANcer train - radiation.  The way things sit right now, Allen will undergo simulation for radiation in two weeks and begin treatments in about three weeks.  We are looking forward to going over The Radiator's plan and fully understanding how he will go about making sure any tricky little CANcer cells that might be hiding are truly GONE FOR GOOD!  The Ninja also gave Allen the good news that he should be able to eat salads - something he has CRAVED for the last six months but been unable to eat due to his extremely low counts - in two weeks.  It just so happens to time up with the baby's birth, so we already have our celebration dinner of huge, yummy salads planned!  

Thank you to everyone for all their kind words, thoughts, and prayers! Thumbs up for COMPLETE REMISSION!

We are ALL-EN!

Monday, April 1, 2013

ALL-EN at the Office!

The Monday after Allen's last chemotherapy treatment, his coworkers had a "Purple Out" to celebrate! The whole office was ALL-EN! They wore purple and showed off their Hodgkin's Lymphoma ribbons (the kids help make)!
Jonathan and Evan are ALL-EN! 
Matt, Mike, and Kim are ALL-EN! 
Sonia, Roger, and Robert are ALL-EN! 
Nick is ALL-EN! 
Mike, Kelvin, and Tye are ALL-EN! 
Alauna, Jeff, and Annie are ALL-EN! 
Bill, Josh, Hayley, Caitlin, Mike, Jessica, Peggy, and Cortney are ALL-EN!
How cool is that?! Allen has the BEST co-workers at Sam's Club! Thank you to everyone for all the support!